Sporting Clays

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The Vulcan Materials Make a Break Thru for Cystic Fibrosis hosted by Cure Finders and Food City will again be held at the new, Iron Mountain Clays, 410 Hardin Rd., Kodak TN (Click to go to Iron Mountain Clays) We’re looking forward to the camaraderie of a good competition, a great meal and the interaction of so many good friends.

Cystic fibrosis news: The drug most recently released (and the drug trial that Cale and Callie have been participating in), called Trikafta is proving to be a Godsend for many CF patients. Bottom line, it’s working. You had a hand in that. While the drug is still quite expensive (about $250,000 per year per patient), insurance companies are receptive (with a lot of work of course!) and most patients are able to have it covered.

A personal note from Jim, Barbara, Callie, Gray and Cale:

2025 and it’s just getting better and better in the CF world.  We’re ramping up for the big CF shoot and look forward to seeing you, hearing from you and getting to see each of you once again.  We have attached team sign up information (last page) and sponsor information.  Give a look and get signed up!

And here’s an update on the Deanda ‘benchmark’ kids. Just a snapshot to show that what you have accomplished over the past 22 years has been effective!

Callie, 28, is married (as you knew from last year) and is now the proud mother of 1 year old Clea, born Dec 20^th..Callie, Aethann and Clea are all doing great. What couldn’t have happened without you, has now happened!

Cale (26) now managing Iron Mountain Sporting Clays, is also doing quite well. His health is good and the drug, Trikafta, is still doing what it should be doing. The remodel of his home is now in the rearview mirror and he is enjoying life!  But his big news is our new daughter in law, Amanda. Yep, he got married this past summer. A great match up!

The Gray man is not to be left out. He is now out of the Army, said he was tired of kicking doors and having sand in his shirt. He’s home now searching for his next adventure.

Most importantly, while cystic fibrosis is always a front burner item in the lives of CF patients, forcing certain behaviors and regimens (treatments, diet, etc.) it has, thankfully, not caused any hospital stays or major illness for our household in the past year.  This is due to the drug, Trikafta that has been a life changing development for many CF patients, these two included. This breakthrough drug is one of the many that are working and working because of the diligence, finances and prayers you have brought to the research table. In the CF news now is the great promise of genetic therapies. These regimens when successful. will push past the barriers of ‘which mutation’ and serve the whole CF patient community. We, like you, will continue the fight until CF stands for Cure Found!

Come and shoot with us.  We’ll give you the rest of the story.

Info or updates? Send an email to deandajim@gmail.com.